Well I haven't been doing that good but I started a new medication called B-RAF to buy some time. This medication works for an average of 7 months, so that will give me some time to recover and figure out what I'm going to do next. I started it last week and I'm already feeling better. It helps to have lots of family taking care of me too. Sorry I'm such a terrible blogger, I just really hate computers! So you guys are still praying for me right? love u guys!

still hangin!

I know it's been a while but nothing has changed yet. Still on the same treatment, about to finish next week, but so far it's not looking like it's working. So, trying to figure out what I'm going to do next. It's pretty hot in AZ, so I'm up in CO visiting with my parents relaxing. More later, luv u all!!!

On to something new!

Well I didn't get good news from my latest treatment so I'm off to San Diego for something new. I am seeing a new doc. at the Ucsd cancer center and starting a new protocol on wednesday. This new thing is called ipilibumab and has about a 15% chance of working, and a 6% cure rate. I'm pretty sure it's my turn to be in one of these percentages! I just got my brain MRI results and it came up clean, so thats a relief. This new treatment is not chemotherapy so I won't lose the half inch of hair that I have now! It's another form of immunotherapy that's suppose to get my T-cells working against these damn cancer cells.

Me and the fam. are doing really good, it's surprisingly weird how normal life can be with cancer. In some ways, so much better, because I really appreciate the normal! Love you all!

still NO news...

I know, long time no hear from me! If you haven't noticed yet, I'm not that into computers! I went to my checkup last week and my scans showed that there was a mixed response in tumor size. So some got smaller and some got bigger. They said it was just to soon to tell which way it was going. I go back on May 4th to rescan and then I will know if it is working or not. I'm doing ok, just can't wait to here some good news! The longer I have cancer, the scarier it gets. Love U all!

Home and Well!

So the treatment went by pretty fast for me, and now that it's over it wasn't all that bad considering it's going to save my life, cross your fingers! The part I thought was going to be the hardest was shaving my head but guess what, you were all right, i even look good bald! Really it's actually kind of nice not having to dry my hair or even brush it! just throw on whatevr wig i feel like wearing that day and im done! I go back on April 6th for a check up and they tell me that they can tell if it's not working, but they can't tell if it is working for about another month after that. I feel good, just don't have alot of energy but the docs. say that will take awhile to come back. It's soooooo good to be home with the family. It's funny, somebody on the plane asked me if I have changed the way I look at my life, I told them NO i've always known how awesome of a life i have is, what has changed is how I look at other people's lives. It's so hard for me to listen to any BS that just doesn't matter from anyone now, and I hope you all remember that it's all BS! Please appreciate everything and everyone you have, that way when life throws you a curve ball your ready for it! Love you all!

I'm here!

Well I'm in the hospital getting ready for my first treatment in a couple hours, can't wait! That was a joke! I ended up finding a wig last weekend and it's pretty cute. I'll post a pic soon. I decieded not to shave my head until I have to in about 6 days, but I'm ready for it. My doc said I'll be really sick for the first 2 days of chemo so you might not here from me until after that. My moms here with me keeping me company and Josh is home taking care of our babies. luv u all!

The big one's coming!

My scans this week went good, so i'll be heading out to MD for my 3 weeks of treatment on wednesday. Still need to find a wig, hopefully i'll find one tomorrow. I'll post from the hospital because I'll be bored to death! luv u all

Bored....

Hello, i'm at home relaxing and bored. Thinking I might take Jules to the movies again! I go back on feb. 7-9th to rescan and hopefully all goes well. If it does go well my doc. says i'll go back the following week and start my treatment. Luv u all!

Can't wait to be home...

So I got stuck out her in MD for a week because I ended up needing surgery to remove a tumor out of my intestines. Everything went fine except I had a problem with the epidural they gave me. I guess the doc. poked somewhere he wasn't suppose to, so I had cerebral spinal fluid leaking to my brain, which gave me a headache every time I lifted my head. So that sucked, but hopefully the problem is fixed NOW! My mom took good care of me all week and I should be going home tomorrow as long as my headache doesn't come back. I can't wait, I miss my kids soooo much! So because of all this, my cells were frozen until I come back in about 3 weeks for treatment. I'm gonna start wig and hat shopping next week, that should be loads of fun!

Doc. called....

My cells are growing! So excited, i go back to MD next week to rescan and meet with the doctors. Stay tuned! Luv u all, ur prayers are working!

New Doctors, New stuff going on!

Sorry, I know i have been such a slacker with this whole blog thing but I promise I'll try and be better! So I have new doctors in Maryland and I love them! I'm in a new protocol now that involves removing tumors and extracting certain cells(tumor infiltrating cells), and growing them to billions in the lab. I then go back to MD for 3 weeks and have 7 days of Chemotherapy to get rid of my immune system and then they put the cells back in me. These cells are suppose to be killing the tumors so hopefully after they put billions back in me that's exactly what they do. After they inject cells back in me I do another 5 days of IL-2. Then its a week or two of recovery. I just have to stay in there until my immunity comes back. So their saying if all goes well I have about a 50/50% chance of this working. I already went back and had the surgery to remove tumors, so my cells are in a lab growing now. The first hurdle I need to get past is the cells growing in the lab, there's about a 20-30% chance they wont even grow. Second hurdle, if they do grow, i go back and rescan and I cant have anything in the brain. 3rd hurdle, I need to be one of those 50% in the end. ummm I should know in a couple of weeks if the cells are growing, so I'll keep u posted. I'm excited about these new numbers and I am very hopeful. So keep your fingers crossed! I hope you all had a fun filled holiday, mine was pretty crazy, but fun! Luv you all

Not so great news!

Ok, so don't freak out, but the scans showed that the last treatment didnt work. Don't worry I feel great and it's not getting me down. I was expecting it. So, next is probably going to be chemo but I still have some other things in the mix, nothing is set in stone yet. When I have more details i'll let you all know. love u all

Waiting game..

Well now it's just a waiting game to see if these IL-2 treatments are going to work for me. December 3rd is the big day when we will find out. The doc. said if it works at all i will keep doing these treatments, if not, he wants to move onto a chemo agent. If this doesn't work i'm not sure if i will stick with him. i'm still really tired, but next week I have finals and lots of make up test so I'm gonna try and get to studing, sucks! So I need lots of prayers in the next four weeks that this treatment works for me so keep me at the top of your list! love u all

That Sucked..

Sorry I haven't posted in so long, but I've been feeling so bad that getting on the computer was the last thing on my mind. I went through all 14 treatments again but it was no picnic. This time 14 felt like 50! I HATE CANCER. I still look like I'm 8 months pregnant but oh my gosh, u should have seen me when I got home on saturday. My face was so big u couldn't even see one of my eyes, I looked like sloth! I have a doc. app. tomorrow at noon and I'll know more, I think, about whats going on. For now I just need to be patient and wait for the sleep to come to me! I'm hanging in there and happy to be home with the family. Luv u all!

Just call me marshmallow!

I look like a big fat marshmallow! This IL-2 makes u swell like crazy. I'm still in the hospital and have 6 treatments down. I can't wait to get out of here. Still bored, feeling pretty good, just really itchy. Love u all

Bored

I'm back in the hospital and I'm bored to death. I'm about to do my 3rd treatment, and so far so good. Josh already left this morning and went to work, so now I'm waiting for my mom to get here and keep me company. I guess I'll play some solitaire now, luv u all!

I am feeling OK today, pretty tired, but made it back to school. I took a couple of make up tests and did OK. I'm just happy my teacher is letting me make everything up so I'll at least be able to finish this semester. I'm not really ready to go back into the hospital Monday, but i am ready to get some sleep from the drugs they give me in there! The kids are still on a fall break from school, so I'm definitely not lonely. My kids r so cute!!!
So, i talked to the hospital in Maryland and they told me that when I finish this treatment and rescan my body, if it hasn't shrunk my tumors by at least 20% then they have things to offer me. So I'm betting on not having to go!!! There is a 6% chance i could fully recover after this treatment but i wont know for 6 weeks. I think my chances are way higher because i have all of you praying for me. I hope your all obeying your father! Love u all

I'm Out

Well I look like crap and feel like crap but things are getting better. If I can type, Im happy! The hospital treatments were rough the last 3 days but I did all 14 treatments, I'm so proud of myself! Anyway, tomorrow I am looking into some different treatments offered in maryalnd that will bring my odds up. So i'll let you know more about that. So I'm doing better thanks to all my family helping out. Its amazing how people pull together in time of need. Their all so strong it's crazy!. Wanna here something funny? Caryl's already asking Oprha for help!!!haha gotta love her! Love u all

day 4 sucks

well I'm not feeling that well and i really miss my kids. 8 down and 6 to go. My cheeks are chubby and my mom says my butts getting pretty big! thank you all for reminding me to stay strong, i am, although i cried just because i didn't want to eat my breakfast, but i did,don't worry mom! Luv u all

Day 3

So I'm about to get my 5th dose, and I'm feeling OK. They told me that they can go up to 14 doses but normally patients only make it through 8. I'm going for all 14! So far the worst side effect, besides just feeling like i have a flu, is the shivers, i felt like i was having a seizure, weird. The nurses here are awesome and they are taking good care of me. Love u all