Friday, September 3, 2010

Well I haven't been doing that good but I started a new medication called B-RAF to buy some time. This medication works for an average of 7 months, so that will give me some time to recover and figure out what I'm going to do next. I started it last week and I'm already feeling better. It helps to have lots of family taking care of me too. Sorry I'm such a terrible blogger, I just really hate computers! So you guys are still praying for me right? love u guys!

Thursday, July 15, 2010

still hangin!

I know it's been a while but nothing has changed yet. Still on the same treatment, about to finish next week, but so far it's not looking like it's working. So, trying to figure out what I'm going to do next. It's pretty hot in AZ, so I'm up in CO visiting with my parents relaxing. More later, luv u all!!!

Monday, May 17, 2010

On to something new!

Well I didn't get good news from my latest treatment so I'm off to San Diego for something new. I am seeing a new doc. at the Ucsd cancer center and starting a new protocol on wednesday. This new thing is called ipilibumab and has about a 15% chance of working, and a 6% cure rate. I'm pretty sure it's my turn to be in one of these percentages! I just got my brain MRI results and it came up clean, so thats a relief. This new treatment is not chemotherapy so I won't lose the half inch of hair that I have now! It's another form of immunotherapy that's suppose to get my T-cells working against these damn cancer cells.
Me and the fam. are doing really good, it's surprisingly weird how normal life can be with cancer. In some ways, so much better, because I really appreciate the normal! Love you all!

Thursday, April 15, 2010

still NO news...

I know, long time no hear from me! If you haven't noticed yet, I'm not that into computers! I went to my checkup last week and my scans showed that there was a mixed response in tumor size. So some got smaller and some got bigger. They said it was just to soon to tell which way it was going. I go back on May 4th to rescan and then I will know if it is working or not. I'm doing ok, just can't wait to here some good news! The longer I have cancer, the scarier it gets. Love U all!

Thursday, March 18, 2010

Home and Well!

So the treatment went by pretty fast for me, and now that it's over it wasn't all that bad considering it's going to save my life, cross your fingers! The part I thought was going to be the hardest was shaving my head but guess what, you were all right, i even look good bald! Really it's actually kind of nice not having to dry my hair or even brush it! just throw on whatevr wig i feel like wearing that day and im done! I go back on April 6th for a check up and they tell me that they can tell if it's not working, but they can't tell if it is working for about another month after that. I feel good, just don't have alot of energy but the docs. say that will take awhile to come back. It's soooooo good to be home with the family. It's funny, somebody on the plane asked me if I have changed the way I look at my life, I told them NO i've always known how awesome of a life i have is, what has changed is how I look at other people's lives. It's so hard for me to listen to any BS that just doesn't matter from anyone now, and I hope you all remember that it's all BS! Please appreciate everything and everyone you have, that way when life throws you a curve ball your ready for it! Love you all!

Friday, February 26, 2010

I'm here!

Well I'm in the hospital getting ready for my first treatment in a couple hours, can't wait! That was a joke! I ended up finding a wig last weekend and it's pretty cute. I'll post a pic soon. I decieded not to shave my head until I have to in about 6 days, but I'm ready for it. My doc said I'll be really sick for the first 2 days of chemo so you might not here from me until after that. My moms here with me keeping me company and Josh is home taking care of our babies. luv u all!

Friday, February 19, 2010

The big one's coming!

My scans this week went good, so i'll be heading out to MD for my 3 weeks of treatment on wednesday. Still need to find a wig, hopefully i'll find one tomorrow. I'll post from the hospital because I'll be bored to death! luv u all